Original Research Article
Year: 2019 | Month: August | Volume: 9 | Issue: 8 | Pages: 282-286
Effectiveness of SCOPE Programme on Health Related Quality of Life and Health Status of Thalassemic Children: A Pilot Study
Kavitha K1, Dr. Padmaja A2
1Research Scholar, Professor, Dept. of Child Health Nursing, B.L.D.E.A’s Shri B.M.Patil Institute of Nursing Sciences, Vijayapur, Karnataka, India
2Professor/ Vice Principal, SVIMS College of Nursing, Thirupati, Andrapradesh, India
Corresponding Author: Dr. Padmaja A
ABSTRACT
Background: Thalassemia is a single gene disorder characterized by defect in synthesis of globin chains results in breaking down of red blood cells. The health related quality of life and health status of thalassemic children are very poor when compare to normal children of the same age.
Aim: The present pilot study was undertaken to assess the effectiveness of SCOPE (Supportive and Coping strategies, Ongoing Assessment, Prevention of complication and Empowerment) Program on health related quality of life and health status of thalassemic children.
Methods & materials: Quasi experimental non equivalent control group pretest-post design with follow up evaluation was adopted. The sample consisted of 12 children (6 each in experimental and control group) diagnosed with beta thalassemia major selected by purposive sampling technique. Demographic profile, PedsQL 4.0 version and clinical profile were used to collect data.
Results: The result revealed that majority of study participants were male (66.66%); most of them were diagnosed with thalassemia major below 6 months of age. The unpaired t test revealed that there was no significant difference between 2 groups regarding health related quality of life score before intervention. However, the ANOVA test showed that there was significant improvement in quality of life score and health status of thalassemic children after the administration of SCOPE Program.
Conclusion: SCOPE Program is very effective in enhancing the quality of life of thalassemic children.
Key words: Thalassemic children, health related quality of life, health status, beta thalassemia major